Patient Organisations

Lists of patient organisations in the Nordic countries. The lists are not complete.

Do you want to update the list, for example if you want to add or update a link to a patient organisation, please contact Maria Nilsson at


ADHD Norway
Aphasia Association
Anxietyring Norway
Norwegian association for occupational injuries
Norwegian association for Autism
Norwegian Bladder Cancer Association
Norwegian Breast Cancer Association
Norwegian Cerebral Palsy Association
Dyslexia Norway
Norwegian Endometriosis Association
Norwegian Teeth and Health Association
Norwegian Hemophelia Association
Norwegian Fragile X syndrome Association
Norwegian Chronic Pain Association
Norwegian Muscle Disease Association
Norwegian Sleep Disorder Association
Norwegian Association of the Deafblind
Norwegian Association of Foot Deformities
Norwegian Federation of Organizations of Disabled People
Norwegian Association for Parent’s with children with a Disability
Norwegian Hearing Impaired Association
Norwegian Ichthyosis Association
Norwegian Laurence-Moon-Biedl-Bardet Syndrome Association
Norwegian Klinefelter Syndrome Association
Norwegian Cancer Society
Norwegian Association for Persons with Intellectual Disability and relatives
Norwegians substance abuse association
Norwegian Alopecia Areata Association
Norwegian Arthrogryposis Multiplex Congenita Association
Norwegian Amputees Association
Norwegian Heart and Lung Association
Norwegian Huntington Association
Norwegian Symphysis Pubis Dysfunction Association
Norwegian Whiplash Injury Association
Norwegian Kidney and Transplantation Association
Norwegian Obesity Association
Norwegian Polio Association
Norwegian Association for Mental Health families
Norwegian Association for Stroke Affected
Norwegian Personal Injury Association
Norwegian Assocation for victims of violence
Norwegian Digestive Diseases Association
Norwegian Association for unexpected child deaths
Norwegian Association Against Tobacco
Norwegian Spinal Injury Association
Norwegian Liver Association
Norwegian Deafblind Association
Myalgic Encephalomyelitis Network in Norway (Menin)
Norwegian Marfan Association
Norwegian Mental Health Association
Momentum – Norwegian Association for Arm and leg prosthesis users
Norwegian Addison Association
Norwegian Multiple Sclerosis Association
Norwegian Head and Neck Cancer Association
Norwegian Asthma and Allergy Association
Norwegian Asthma and Allergy Association, Section Indoor Climate
The Norwegian Association of the Blind and Partially Sighted – NABP
Norwegian Diabetes Association
Norwegian Deaf Association
Norwegian Fibromyalgia Association
Norwegian Association of Disabled
Norwegian Association of Young Disabled
Norwegian Migraine Association
Norwegian Myalgic Encephalopathy Association
Norwegian Parkinsons Disease Association
Norwegian Whiplash Association
Norwegian association for people with a stoma, reservoir and gastrointestinal cancer
Norwegian Coeliac Association
Norwegian Dysmelia Association
Norwegian Dystonia Association
Norwegian Epilepsy Association
Norwegian Association for Persons with Developmental Disabilities
Norwegian Association for Anal Atresia
Norwegian Association for Bone Marrow Transplant
Norwegian Cystic Fibrosis Association
Norwegian Association for Ehlers–Danlos syndrome
Norwegian Association for fertility and infertility
Norwegian Association for Neurofibromatosis
Norwegian Osteogenesis Imperfecta Association
Norwegian Association of Tuberous Sclerosis
Norwegian Glaucoma Association
Norwegian Haemochromatosis Association
Norwegian Immunodeficiency Association
Norwegian Association for Restricted Growth
Norwegian Association for Stuttering
Norwegian Arthritis Association
Norwegian Lymphoedema Association
Norwegian Osteoporosis Association
Norwegian Patient Association
Norwegian Porphyria Association
Psoriasis and Eczema Association
Norwegian Rheumatism Association
Norwegian Sarcoidosis Association
The Thyroid Association of Norway
Norwegian Tourettes Association
Norwegian Association for Bekhterev Syndrome
Association for Eating Disorders
Norwegian Spinal Association
The Norwegian Association for Spina Bifida and Hydrocephalus
Norwegian Council for Mental Health (NCMH)
Organ Donation Foundation
The Children’s Cancer Society
Turner Syndrome Association in Norway
Disable Youth Association
Foreningen for hjertesyke barn


The Autism and Asperger Association
National Association Balans -for all with experiences of depression or bipolar disorder
The Leukemia Association
Brain Injury Association – Hjärnkraft
Carpa Patient Association
Association for fibromyalgia
HIV-Sverige- National Association for HIV positive
Support Association for Hormonal diseases
Association for mouth and throat cancer
Liver diseases
Association for gastro-intestinal diseases
National Association for stomi operation
National Association for Young Rheumatics
Viking- National Association for Heart and lung transplantation
National Association for patients with Chronic Fatigue Syndrome
Rare diseases Sweden
Association for schizophrenia
Association for Alzheimer in Sweden
Swedish Anxiety Society
Swedish Aphasia Association
Swedish Association of OCD Ananke
Swedish Asthma and Allergy Association
Swedish Ataxia Association
Swedish Back Society
Swedish Coeliac Association
Swedish Cystic Fibrosis Association
Swedish Diabetes Association
Swedish Edema League (SOF)
Swedish Epilepsy Association
Swedish Guillain-Barre Syndrome Support Group
Swedish Heart and Lung Association
Swedish Heart-Children’s Association
Swedish Immunodeficiency Association
Swedish Kidney Association
Swedish Lung Cancer Association Stödet
Swedish Marfan Association
Swedish Migraine Association
Swedish Neurofibrosis Association
Swedish Association for Disabled Children and Young People
Swedish Osteoporosis Association
Swedish Parkinson’s Disease Association
Swedish Prader Willi Syndrome Association
Swedish Psoriasis Association
Swedish Rett Syndrome Association
Swedish Rheumatism Association
Swedish Social and Mental Health Association
The Swedish Addison Association
The Swedish Ehlers-Danlos Syndrome Association
The Swedish Ichthyosis Organization
The Swedish National Association for Families with Hepatitis-B Infected Children
The Swedish Thalidomide Society
National Association for Peripheral Facial Palsy
Thyroid Association in Stockholm


Database of ongoing studies

Please note the list is not complete.

Do you want to update the list, for example if you want to add or update the list, please contact Maria Nilsson at

Sverige: Vetenskapsrådet
Norway: Helsenorge
Denmark: Lægemiddelstyrelsen
Finland: Finnish Medicines Agency